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Medical Gaslighting
‘Medical Gaslighting’ You may have heard this term before, maybe even more so recently. Maybe it’s happened to you, it’s not something new, but rather something that’s being acknowledged and talked...
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“Listen to your body”…?
Hello? Body? I’m listening! you did WHAAAAT?! I’m sure you’ve heard this phrase, probably hundreds of times. Although it is great advice – what does it actually mean?! There’s a lot of different ways...
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Gallium 68: prep & overview
Congratulations! You’ve are having the ‘gold standard’ imaging with relation to pheochromocytomas and paragangliomas. The Gallium 68, I have had many of these scans, all the way from clinical trial...
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10 ways to calm your stress response
I’ve been living with a body that’s stuck in fight or flight since my teens. Of course for the longest time I didn’t know how to control or manage it. Then once I knew what I was dealing with, I was...
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Health Update: navigating multiple conditions
I feel like I have so much to discuss since yesterday’s appointment, so here we go. NET CANCER DAY has really got me thinking a lot about how much responsibility falls on us as the patient. I’ve...
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NET CANCER DAY 2022
What is global NET CANCER DAY? What does the ‘NET’ stand for? NET cancer day is recognizing all ‘neuroendocrine’ type tumors and cancers. Meaning the tumors arise from the neuroendocrine cells in the...
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Miranda’s chronically fabulous Christmas 🎅🏻🎄🛍 MUST HAVES
HELLO Fab Fam! I’m so happy you’re here. The holidays are fast approaching, the most wonderful time of year has some challenges for the chronic community. I’ve compiled my ultra fav items to help...
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Unanswered Questions and a Mammogram?
Last oncology visit of the year I count appointments, small wins, month to month, day by day, because there’s no line we cross or distinguishing number that says we’re ‘done’. This was originally our...
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Life in an unpredictable body
Anyone with a chronic illness knows a certain unpredictability. Whether they will have a good day or a bad day is unknown. But what if you lived in a body where the suddenness of the symptoms ruled...
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Radioactive Iodine ☢️
As I’m being wheeled in, I see the door and my stomach flips. I’m in the same room as MIBG 8 years ago… Catch up here on my experience so far with metastatic thyroid cancer and how it led me to doing...
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